Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – approximately 500,000 individuals worldwide. Children and adults with AS typically have balance issues, motor impairment and can have debilitating seizures. Some individuals never walk. Most do not speak. Disruptive sleep also can be a serious challenge to the individual and caretaker(s).
We partner with Foundation For Angelman Syndrome Therapeutics (FAST) for all fundraising efforts. Help Fund Research to Cure Angelman Syndrome.
Our family of six was so excited when we found out we were adding one more to the mix. We did a gender reveal and were over the moon with joy when we learned Remi would join us. All our pregnancy tests came back normal, but little did we know Remis’ life would be far from it.
Sunday, October 6, 2024 at Cherokee Hills Golf Course
SEP 14 Hard Rock Hotel room-block cutoff
SEP 26 Registration closes
OCT 6 Tournament Day at Cherokee Hills Golf Course
Discounted room rates at Hard Rock Hotel & Casino Tulsa are available. Book your stay from the link below to receive the discounted rate.
Group attendees may also make reservations by calling (918) 955-2502. Ask for RemiCup: Drive for a Cure to receive the special group rate.
There are many ways for you and your business to help us raise money and Drive for a Cure to Angelman Syndrome. To become a sponsor or discuss sponsorship details, please contact Ron Owens at (918) 955-2502
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